We envision a world where every woman with a bleeding disorder is diagnosed early, treated with dignity, and supported by a global sisterhood.
To empower women living with rare bleeding disorders through aggressive advocacy, clinical education, and peer-led community support. We are dedicated to raising awareness for conditions like Von Willebrand Disease (VWD) and Hemophilia, ensuring every woman receives the specialized care she deserves.
We envision a healthcare landscape where the "16-year diagnosis gap" is eliminated. Our goal is to foster a world where women are proactively screened for bleeding disorders, receive early interventions, and are supported by a legislative system that prioritizes rare blood health.
Our Core Values
Giving women the tools to be their own best medical advocates.
Providing evidence-based resources to patients and providers.
Creating safe spaces to share stories and reduce isolation.
Ensuring women receive the same quality of hematology care as men.
We give women the vocabulary and clinical knowledge to stand their ground in the doctor's office. We believe a patient who understands her blood work is a patient who survives.
From Factor Deficiencies to Sickle Cell, we provide accurate, up-to-date resources curated in collaboration with hematologists and the CDC.
No woman should bleed in silence. We create inclusive spaces and retreats where women can share their stories and find strength in shared experience.
We don't just support individuals; we challenge the system. We advocate for policy changes and medical school curriculum updates that recognize bleeding disorders as a critical issue for women.
Understanding Our Name: While the term "Free Bleeding" is often associated with a social movement regarding menstruation, Free Bleeders Org is a clinical advocacy group.
Our name represents the struggle of women whose blood literally "bleeds free" due to a lack of clotting factors. We are a medical resource for Hemophilia, VWD, and rare Factor deficiencies.
Your support funds the research and outreach programs that identify undiagnosed women in our community.
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